Participate in research

Register your interest and we will contact you about rare disease research opportunities relevant to the condition you tell us about. You will only hear from us when something matches.

Find out what taking part in research involves

Your details

Condition

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Your details

First name * Please enter your first name

Last name * Please enter your last name

Email address * Please enter a valid email address

Phone number optional We will only call or text you if you tick the box below. Enter a valid phone number with country code, or leave this blank

I am a * Please select your role

Country *

Please select your country

We never sell your data, and never use it for marketing.

Condition

Condition or disease area *

Search by name or abbreviation. Select a condition from the list, or choose “Other disease or condition”

We will contact you if a research opportunity matches the condition you registered. Your details are not shared with a research team unless you decide to take part.

Rare Disease Connect LLC is the data controller. Your information is stored in the United States. If you are in the UK or Europe we use Standard Contractual Clauses to protect it. You have the right to access, correct, erase, and withdraw consent at any time. Full details in our Privacy policy.

You're registered.

We've sent a confirmation email to . If it doesn't arrive, check your spam folder or contact us.

We will reach out when a research opportunity matches the condition you registered for. We'll always explain what participation involves before you decide.

Explore RDC Community What research involves

To withdraw consent, access your data, or request deletion, email privacy@rarediseaseconnect.com. We stop contacting you as soon as you withdraw, and respond to other requests within one month.